My Online Friends = Good Medicine

During the past decade I’ve tried dozens of traditional and alternative treatments for rheumatoid arthritis and fibromyalgia. I’ve appreciated pain complexity and adjusted remedies to fit, backed off harsh medications or added steroids, adjusted my diet almost daily along with activity levels (completing a project may take 5X as long as it used to). Consistency vanished along with my life outside disease management until I joined an online support group, but not JUST any online support group. This group is fiercely devoted to humor (you may get ousted for complaining), support served on the side (in heaping portions, if needed). Not long after joining this group, my focus shifted, and I began laughing again. Sometimes I was in horrid pain and unable to walk, but I felt better after connecting and laughing. Sometimes I provided the laughs, and it felt good, like I contributed something positive! I’d almost forgotten that feeling.

Truly understanding the effects of disability and pain on a person’s self-worth when you are healthy is beyond difficult even if temporarily stricken with an illness because you get better. That’s not a judgement (YAY for healing), but reality as much as I cannot possibly understand what it is like to live in (Insert Least Liked Country) for the rest of my life. I can learn as much as possible about (Insert Least Liked Country), even visit, but without being forced to live there when I don’t want to, it is a topical comprehension. Experience is where empathy grows, and from shared experience friendships are born.

My friends are online mostly, but please don’t pity me or assume I’m lonely/depressed. I have people I can be 100% real with, if not in the group, then on messenger. Around-the-clock support is there when steroids keep me up all night because: 1. I have friends across the world. and 2. I’m never the only one on steroids at any given time.

We have regional meetups, where I get to hug a few of these Warriors in person vs. our usual cyber-hug routine and we laugh for hours, and end with promises to meet again. Whether online, or in the flesh, the founding member in my neck of the woods teases mercilessly, tells great stories, and is a pretty good sport when humor boomerangs on him. Some friends have travelled for hours to meet each other, in my city this summer and in Elkhart, Indiana yesterday. These are not only friends I laugh with, but also friends who pray for me and send me positive energy when I’m very sick or just walking with a limp. They are the friends who invite us for a big spaghetti dinner, and add special details like twinkle lights and grapes hanging from the ceiling and little gifts of jasper. And they are the ones at home watching us online, hopefully getting a little ambient flavor through the screen. 

I don’t socialize less because of this group, trust me. If anything, they help keep me fit for decent company.13257

 

 

Essential and unsurpassed friendships

I will ask your forgiveness at the outset of this post for my sentimental remembrances of friendships that have been cornerstones to my uncharacteristic character and offer my advancing age as the only excuse for this mushiness.  The time to give credit where credit is due has arrived and I can no longer keep them unvoiced in my head.

She knows who she is, the friend who risked her popularity to befriend me, a clear underdog in a harsh teen landscape.  We bonded over cigarettes, painful childhood secrets which had never before been shared, and belly aching laughter that made the tears stream down our faces.  I never understood why other girls were intimidated by her, but her protection saved me more than once and bullies steered clear of me for the first time in my life.  She made loving gestures, surprising me with cards, posters, and even a birthday party.  Her love helped me grow strong, confident, and free to be silly.  She has downplayed her impact on my life when I have tried to impart how happy she made me.  Have you ever noticed how generous people do that?

She knows who she is, the tenacious friend that I could not shake during the darkest period of my life.  She did not run from my overwhelming grief over losing my infant son.  It seemed to last forever and I gave her nothing, yet she expressed her love for me every single day of those two years.  I wanted to be left alone with my pain, not even answering the phone most of the time.   She would leave simple answering machine messages saying, “You don’t have to talk to me, but I am here if you want to.  I just wanted to let you know I love you and am thinking of you today.  Please let me know if you need anything and I will be there.”  And she was there, even though I rarely let her know.  She was the friend that loved me out of it, that helped me see that good still existed and it went by her name.

She knows who she is, the friend that shared her creativity and became a safe haven for mine.  She encouraged me to write and found value in pieces that I believed were garbage.  She is better than Strunk & White and was my first editor.  Our visits are an encouraging fix for me that fill my creative well and result in positive forward motion.  It is believed that friends are mirrors of our own selves.  In her case, she is often my best self.

He knows who he is, the volunteer who recognized how overwhelmed I was and generously offered to help with whatever I allowed.  Although he dislikes the term, he IS smart and shares his intelligence with me at a rate that my brain cannot absorb.  The most valuable knowledge I have gained from his friendship is how happiness can be derived more so from life’s simple aspects such as nature, food, giving of oneself, camaraderie, and butter pecan ice cream than from temporary material goods.  I now treasure my experiences and memories more than I did before I knew him.  He is an interesting combination of stimulation and serenity.  I hope that one day I can accept myself as wholly as he accepts me (and himself).

Lastly there are my two best friends, the one that gave me life and the other that gave me new life when she was born.  Although bonded by blood and mother-daughter love, our friendship was not guaranteed, but we actually like one another.  Our similar independent natures require that we each have differing views and personalities, yet no one could tell our cores apart.  It is the personification of friends mirroring one another.  They are both fiercely loyal, opinionated, and brutally honest.  I know them like I know myself.  We are like a stout tripod that cannot be tipped.

My public gushing may very well be influenced by my bouncing hormones, but my appreciation of my friends has always been there, unexpressed until now.